When I went looking for personal ostomy blogs, I was surprised how few there are. Especially ones that are updated reasonably often and not years out of date. These are the best ones I found – well written, informative, interesting, and kept up-to-date.
Three cheers for these great bloggers who take the time to inspire others!
Beyond Bowel Cancer
Wayne Smith was diagnosed with bowel cancer in 2016. After surgery to remove the cancer, he was left with a permanent stoma and a Ken butt. He’s now “back working on the family farm and living life.” His blog posts are insightful and informative. One of my favourites is his list of 10 positive things about irrigating your stoma.
Dr. Don Schiller – the BCIR and Kock Pouch Specialist
Dr. Schiller has been performing continent ileostomy surgery since 1989. He specializes in patients with a malfunctioning conventional Brooke Ileostomy or a malfunctioning or failed Ileoanal J-pouch (or Kock Pouch). Dr. Schiller has maintained this informative and regularly updated blog about ileostomies since 2014.
The host of Newbie Ostomy was diagnosed with Ulcerative Colitis when she was in college and underwent ostomy surgery in 2013. She says that the best part of her ileostomy, “aside from not living in the bathroom in excruciating pain” any more, is the ostomate community who are so inspiring.
Sam Cleasby is a blogger, writer, health activist, and public speaker. She was diagnosed with Ulcerative Colitis in 2003 and ten years later, she had a colectomy and an end ileostomy. She’s had a j-pouch and hernias and she’s a “Barbie butt,” but she’s “passionate about positivity” and is all about “… loving yourself, being happy, and being So Bad Ass.”
Stephanie Hughes was diagnosed with Crohn’s Disease in 1999, at age 13, at was given a permanent ileostomy in 2012. She says that having the surgery “gave me my life back,” and now identifies herself as a writer, an ostomate, a triathlete, and a mom.
This blogger, Julie, has had an ileostomy for about 20 years. She set up her blog to try to normalize the conversation when it comes to IBD. Newly married (in 2019) she continues to find time to write with candor and humour about her travels, her surgeries, good days and bad days, and what it’s like to live with a semi-colon … or no colon at all.
This award-winning blog was founded by Jessica Grossman in 2009 as a platform for changing the way the world views ostomies. Jessica was diagnosed with Crohn’s Disease at the age of 8. As a young teen, after “countless diets, torturous tests, and medications with side-effects worse than the disease itself,” Jessica had to make a choice. Ostomy surgery, or death. In 2003, Jessica underwent ostomy surgery as her last hope. Since surgery, Jessica has been in almost perfect health.